These two modest proposals should reduce the risks of the therapeutic misconception in ‘cure research’. The word ‘cure’ should not be used in obtaining consent for HIV ‘cure trials’, and names of people involved in past experiments should be avoided in the informed consent process. Clark papers (1910-1984) provide information on the development of the Jarvik-7 artificial heart, the implantation of this heart into a human. Barneys ethnicity is Caucasian, whose political affiliation is unknown. Sometimes Barney goes by various nicknames including Barney C Clark, Barney C Clark, Barney Chester Clark and Clark C Barney. Previous to Barneys current city of Orange Park, FL, Barney Clark lived in Pensacola FL. Names, including the Mississippi Baby, Barney Clark, Baby Fae and even Martin Delaney, are more suggestive of fantasy than science. Barney Clark is 89 years old and was born on. In research, the unintended consequence of ‘naming’ based on goals (‘cure’) or specific individuals (like the Mississippi Baby) tends to subvert informed consent when the famous case is a ‘success’, and to prematurely end a line of research if the named subject dies. The role of famous experiments and the use of one individual's experience to designate and justify a whole category of research have always threatened to undermine the validity of informed consent to research by making it seem to be a validated therapy.
Trials using children as subjects are much more problematic from an informed consent perspective than trials on competent adults, although the ‘therapeutic misconception’ is a central concern in both.
0 kommentar(er)
